Grief support groups, condolence advice, funeral etiquette and more
A continutaion of the "When a Spouse or Partner Dies" thread.
Latest Conversations: 10 hours ago
This might be a rough time for many of you. Do what you feel you need to do to get through it. Remember, someone is here almost all the time to talk to you.
Started by Bonny Jones. Last reply by Bonny Jones Jan 22.
Started by Tim's Mom, Vickie. Last reply by Bonny Jones Jan 16.
Started by Susan. Last reply by Marsha H Sep 2, 2018.
Steve.......I, like Mary Jane, can't entertain the thought that your cancer has returned. I assume you've stopped taking the Humira. The commercial I saw for that tonight was Crohn's disease so apparently it's prescribed for more than one issue. Needless to say, you and Chuck are in my prayers. I wish I could give you both a hug in person but I'll have to settle for sending a virtual hug.
Marsha....It's good to hear from you. I've been worried. I've been wanting to post and ask if you were okay but figured if you weren't coming to the site for some reason, then you wouldn't see it. I guess you can't trust your email :)
Thank you for your kind understanding of my feelings. As always, you share so much of yourself with us, and it always helps me past the point words can convey. I had been wanting to say something to you weeks ago when you were facing you own anniversary, but couldn't corral my thoughts into anything even remotely coherent. I am sorry for my silence at that time, but my love and prayers were with you .
Making sense of my thoughts and feelings right now is becoming challenging at best - sometimes impossible. Tomorrow, August 27th, was the date in 1983 that I sat in a restaurant with Larry, my brother, and two friends in Massachusetts. We had been to visit my mother in the hospital that afternoon. She was in the final stages of her battle with lymphoma, and my father wouldn't leave her side to join us. After the main course, waiting for coffee, I stood up, looked into Larry's eyes across the table, and asked him if he would do me the honor of spending the rest of his life with me. To my amazement, he didn't hesitate and answered "yes".
What led me to such a bold move, and what transpired in the following days are things I want to write as a story the way I used to post awhile back. I hope the newer members will forgive my indulging in using a third person format in my memoir. Until later -
Steve...I will not even entertain the thought that your cancer might have returned. Humira is a HORRIBLE drug...and one of my closest friends has psoriatic arthritis..and she was given that...but I cannot remember if it was by injection..and she had a terrible reaction. I will ask her the details tomorrow. The only thing she can take for that condition are steroids, nothing else works for her pain...and since they are bad for people the Drs don,t want to give her too much...so she just sucks it up and lives with it.
I think it is terrible they don,t test these designer drugs like they used to...they just cave to Big Pharma and use us as quinie pigs. Stay strong, my friend we will all be praying for you.
Thinking of you today and sending prayers for strength and courage. I know exactly what you mean by hearing the news about Senator John McCain. For you especially, as your beloved husband passed from glioblastoma.
All day yesterday this news brought back the day when Joseph and I learned of his terminal condition. I can only imaging how it must be for you with your husband Bill's anniversary of passing today. So many things trigger the extreme pangs of pain and loss.
May you have the strength to make it through the day. And may the good memories you shared with your husband bring comfort and relief.
Very sorry for your loss. Losing one's beloved spouse/life partner is one of the cruelest and toughest of all human experiences. I wish you strength, courage, and forbearance as you try to grapple with your irreparable loss. The "What ifs" make the bereavement even more painful. There are no answers, unfortunately. Perhaps for some there is?
Take care of yourself and visit this forum to find support and understanding.
I was missing seeing you posts. You and Marsha had both been quiet for a while, and it was not the same visiting this forum, so I am really glad that you "came back" here to "visit." And as it always happens with your posts, they are always touching and speak to me in way that is comforting.
Three years after Larry's passing you continue to struggle with the vacuum he has left behind. Me, too, it's been four years since Joseph left me, and while some of the practical day to day things have gotten better, the constant missing and longing haven't diminished one bit. Like you, as I go through my day, my life, I hope that Joseph approves of the way I am going through it as he watches over me. I am sure Larry is proud of you as you try to make the best of it as you can.
Did I miss your 35th anniversary, or is it tomorrow Monday? Either way, I am thinking of you and sending fond thoughts so that the day is at least bearable. May the good memories of love and happiness help bring some comfort to you and brighten your day, my dear friend.
Big hugs, Trina
I had been concerned with your long silence and been meaning to write to ask if all is well with you. So it's really good to get this beautiful gift of a song from you! It helped soothe me; the nature video that goes with it is also calming. Thank you for bringing some relief to my sad Saturday afternoon as I consider the sorry options to spend the weekend.
You are such a wonderfully giving person! Your posts are uplifting and are meant to help the rest of us make it through the day. I always look forward to your messages and posts. So again, thank you for bringing some relief.
Stay well, my dear friend.
Dear Brother Steve,
So sorry to learn of this distressing news of your health problems. I am praying that the side effects of Humira are not what you might be fearing. I know you are a very strong person, and with your faith, you are equal to any fight that you might have to fight.
Sending you prayers for strength and courage.
Thank you for the song…your choice of music always delights me and takes me back to the real world we live in, we just have to ” stop and smell the roses ”.
“There will always be a reason why you meet people, either you need them to change your life or you’re the one that will change theirs.”
Angel Flonis Harefa
To all my Legacy family,
As some of you know I was diagnosed with psoriatic arthritis a few months ago. My doctor started me on a regime of treatments that are designed to halt the progress and to ultimately allow me to regain more mobility with my right hand. One of the medications is Humira, taken by injection every two weeks. Humira is designed to stop one’s immune system from producing the proteins that cause the arthritis to attack certain joints, it also comes with a litany of side effects and warnings. The odds of all these side effects would be something like one in a million. 9 years ago, I had prostrate cancer and had to have my prostrate removed. I was told that after 5 years, my PSA blood test should be and remain to be 0. Also, that any cells left from the surgery could remain dormant, and as the years pass by my odds of a re-occurrence would continue to diminish.One month of use Humira my blood work shows a positive PSA of 1.96 and one week later 2.11, so it may be returning. I visited with an Oncologist this past Thursday, he took more blood and discussed with me and Chuck that there is a strong possibility that Humira has caused this. May be nothing more than that, however, he wants me to come back on the 7th of next month to review my blood work and to talk about scheduling me for a pet scan to see if they can find any cancer cells. If they do, then he will start me on radiation treatments to stop it in its track. I am better this morning than I was yesterday, and I am asking my family to keep me in your prayers. I feel certain that should I have to fight this cancer again, our Eternal Father will be there in control, its not for me to question why or what, I just have to trust and have faith that He has brought me through so much more in my life.
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