Grief support groups, condolence advice, funeral etiquette and more
A continutaion of the "When a Spouse or Partner Dies" thread.
Latest Conversations: 3 hours ago
This might be a rough time for many of you. Do what you feel you need to do to get through it. Remember, someone is here almost all the time to talk to you.
Started by Bonny Jones. Last reply by Diamond Jan 31.
Started by Tim's Mom, Vickie. Last reply by Michele Jul 21, 2019.
Started by Sharon Kinsey. Last reply by Frances C Younger Jun 24, 2019.
Steve ... You're welcome. I am so happy your memory came back and you know the name of the doctors and hospital. What I did with all of Ernie's medical paperwork was put it in a plastic bin and I still have it. Just in case you are not aware of this, pharmaceutical companies are all about money and could care less what they put out there for patients even if FDA approved. Before you fill any prescription given by your doctor Google it and see what the side effects are and also, go to the reviews on that drug by other patients (from the horse's mouth.) I went over every medication Ernie took and found 2 serious mistakes and thankfully he did not take that particular medication. I have worked in doctor's offices, but at the time didn't realize many of these new medications shouldn't have been on the market. Sometimes the doctor would give out free samples to their patients. Drug companies have agents that see all doctors with the newest of the new medications and I always call it, 'the flavor of the month.' It's not to say some medications don't work and have fewer side effects. I can't believe that your doctor actually prescribed your medication knowing full well that it can cause cancer. Also, if your gut feeling rises up listen and as you are doing now research it online.
I wish you the best of luck my dear brother and lots of prayers flying your way.
Hugs & Much love
Your sis Marsha
Mary Jane, I live in Missouri so I am good, my daughter lives in Wilmington N.C. but they are all safely out of horms way in Delaware, saying prayers for all there but so thankful it is now a cat 2
To DEB.... or SARA...I cannot remember but I think one of u lives near the hurricane area? Please let us know u r safe...
Oh, Steve...you just concentrate on healing. I totally get it...BOb went for Brain radiation a few times each week so I know how it can suck the energy from you. Maybe we can set something up on FaceTime or something, to at least meet. (Except the camera on FaceTime is NOT kind..shows every wrinkle and flaw hahahaha)
Just trying to lighten the mood. This is going to b a quick post..I have to go get my nails done. LOL. I usually don’t leave the house.
The next time I post to u, I will tell about an online friend, in a group of Doll people, and his illness, and the power of prayer from about 20 members. Know that my heart is with you..and here is a MAJOR suggestion about memory..I keep a pad and pen close by, as things tend to flutter past my mind...important things, and 2 seconds later they are gone..but things WILL start doing that, and if u have a pen close by, write them down ASAP...it will definitely help your memory. Ok, back later, and just take care of yourself...
Thank you, my anger with the Pharmacy Industry as a whole is boiling at best. I read everything now, I question everything and then I spend hours online looking and reading.
After meeting with the radiologist yesterday, I feel more positive about my recovery and to finally rid myself of this cancer. I trusted the urologist in South Florida, maybe too much. Mark did not and had his doubts about the whole thing. I am sure he has been guiding me along these past few weeks. I was so angry with myself for tossing out so much paper work when I moved from our apartment and then throwing out more when I moved to NJ. All the time in the back of my mind was a voice "are you sure" each time I thinned out the mounds of papers...
Until last night I could not remember any of the doctor's names from 2009 or even the name of the hospital where the surgery took place. Driving home last night the name of mine and Mark's primary care doctor "popped into my head". Getting home and working from that one name, took me to finding the name of the urologist...I remembered that his name only had 3 letters...so that narrowed down the search to one, after I googled his practice and saw the aerial view, bingo, my memories lit up like a light bulb. Finding the hospital was just as easy. All of them are still there with the addresses, phone numbers, etc...
So my search was not in vain and today I can give all this information to my doctor here and they can request all my records faster than patients. Thanks to Mark and the many other angels around me...I am going to be fine and I am going to beat this/
Thank you one and all on this site, my family, my angels,
After talking to the Radiologist yesterday, he suggested that any "fun trips" be postponed until after the new year, and perhaps not until sometime in February. My treatments were extended from 6 to 8 weeks, plus he wants me to have a MRI completed over the next week or so. I spent hours on the internet last night looking up my primary doctor in Plantation, Florida, the urologist and the hospital that did the initial surgery in 2009.
He needs all of my records to assist the mapping out of where to aim the beam...for lack of a better explanation of the procedure. He was shocked to learn that I did not have follow up radiation treatments after surgery. He explained to me and Chuck in great and graphic details the procedure and what is left behind that cannot be removed, hence, radiation treatments to finish off the cancer. This could very well be something that has been there all along. His best guess from asking questions that my original cancer probably started in the mid 1990's and went undetected until 2008.
The radiation treatments will most likely leave me tired with little or not side effects, that plus having to travel 27 miles each way to and from the center will be tiring enough.
As much as I would like to plan a trip away from all of this I will be held captive in the Dallas area until we can rid myself of this creepy disease.
I and Chuck were extremely pleased and our moods were uplifted by this doctor...he told us both that the treatments kill good and bad cells, however, cancer cells cannot and will not repair, unlike the good cells.
So for now my dear sister, our fun plans on meeting face to face will be on hold until after January.
Steve....I'm so sorry about your diagnosis but glad it was caught in the early stages. A little heavenly intervention I believe. I wish I could be there with you and Chuck for moral support. Since I can't be there physically, please know that I am truly thinking about you both and praying for you. You're a warrior so you'll kick this C in the A!
Sending my love.
I think it would b the coolest thing ever to meet you and Chuck..I am not leaving for MONTHS...my daughter is coming to start packing stuff I am keeping, and the rest of the stuff I am donating...in October. Then I have to seriously look for a place to live in CA...in November..if I don.t find something, I am not moving till I do. This will be my final residence, so it has to be perfect..if I do find something in November,I have to come back and list this house..but hopefully I will b ready to move when/if I find something...so I will b outa here in December, or January. Maybe
i know it will just happen...when everything is right. So maybe we should really think about meeting soon. I have to ponder the logistics more...lol I am ready to call it a night.
Dearest brother Steve ... I am so proud of you for fighting back re the 'C' and thankfully it was caught in time. I get so very angry about the medications that they can give patients when the doctors know full well they have horrific side affects and cause more problems than the patient already has. Humira is all over the TV and the Attorneys are jumping on it asking patients who have taken it to sue. It's up to the individual of course if they want to do so. Your primary doctor knew full well the side effects and that it was highly possible it could bring back cancer. I did send you that link. May I suggest before you ever take any medication you Google it. I use to do that for my Ernie. He had a small heart issue (blood pooling at the bottom of his hard in the chamber) and his heart specialist gave him a medication, but Ernie refused to take it until I researched it and thank God he did. This particular medication was only to be give to anyone who had a heartache! Thankfully there was also another heart specialist who landed on Ernie's heart specialist like a Sumo Wrestler and so we went with him without anymore issues.
I am so very proud of you Steve and I knew you were a fighter and yes, you are going to beat this! My prayers and thoughts are always with you and Chuck. Rest my friend and keep coming to Legacy so we can surround you with love and hope.
Thank you Deb, I know you would...I am comforted oddly each day when I can calm down my mind focusing on the negatives. These calming moments are from all of you on this site and from my friends and "family" here in Dallas. My cousins and my one Aunt and Uncle that I have stayed close too are also rooting me onto success.
Mary Jane...you made me smile today...you are such a dear soul, thank you.
And yes it was the Humira that brought this to be, now, having said that...I am glad that it did now while it is so treatable. Some one up there is looking out for me and all of us down here as we muddle through our days.
Please let me and Chuck know of your impending move date...we really would like to meet with you and have lunch or dinner on us anywhere you choose. You can invite anyone you wish to join us in your celebration of moving.
Love and hugs,
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