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Comment by Marsha H on September 9, 2018 at 4:08pm

Dearest brother Steve ...  I am so proud of you for fighting back re the 'C' and thankfully it was caught in time.  I get so very angry about the medications that they can give patients when the doctors know full well they have horrific side affects and cause more problems than the patient already has.  Humira  is all over the TV and the Attorneys are jumping on it asking patients who have taken it to sue.  It's up to the individual of course if they want to do so.  Your primary doctor knew full well the side effects and that it was highly possible it could bring back cancer.  I did send you that link.  May I suggest before you ever take any medication you Google it.  I use to do that for my Ernie.  He had a small heart issue (blood pooling at the bottom of his hard in the chamber) and his heart specialist gave him a medication, but Ernie refused to take it until I researched it and thank God he did.  This particular medication was only to be give to anyone who had a heartache!  Thankfully there was also another heart specialist who landed on Ernie's heart specialist like a Sumo Wrestler and so we went with him without anymore issues.

I am so very proud of you Steve and I knew you were a fighter and yes, you are going to beat this!  My prayers and thoughts are always with you and Chuck.  Rest my friend and keep coming to Legacy so we can surround you with love and hope.

Much Love,

Your sis Marsha 

Comment by Steve G. on September 9, 2018 at 2:39pm

Thank you Deb, I know you would...I am comforted oddly each day when I can calm down my mind focusing on the negatives.  These calming moments are from all of you on this site and from my friends and "family" here in Dallas.  My cousins and my one Aunt and Uncle that I have stayed close too are also rooting me onto success.  

Mary Jane...you made me smile today...you are such a dear soul, thank you.

And yes it was the Humira that brought this to be, now, having said that...I am glad that it did now while it is so treatable.  Some one up there is looking out for me and all of us down here as we muddle through our days.

Please let me and Chuck know of your impending move date...we really would like to meet with you and have lunch or dinner on us anywhere you choose.  You can invite anyone you wish to join us in your celebration of moving.

Love and hugs,

Steve

Comment by Mary. Jane on September 9, 2018 at 12:14pm

P.S  I think I meant Humira..not Humana..sorry. 

Comment by Mary. Jane on September 9, 2018 at 12:13pm

Dear Steve.  Your original post was like a blow to my head.i kinda use u guys as a barometer for positivity. You got thru so much, but you made it. When u offered to take me for my colonoscopy I was overwhelmed...I told people that, and I was met with suspicion, which I can understand..but I know it was genuine. 

I hope this thing u have is as “light” as you describe...because having either of you die is unthinkable. I too, am 71....I will b 72 this month. When I first came here, I DIDN,t care if I lived or died. I just DIDN,t see any reason to live but NOW after these 2 1/2 years, I don,t want to Die. I find myself looking forward to relocating...and I am actually cleaning out THINGS now. (I am just venting here..sorry) When I thought I might have cancer, I had already made up my mind to not get treatment...to have only palative care. I DIDN,t want to spend my last days or months going to the Cancer Center every day, which is what BOb did, just to die anyway. I had promised myself since there were no guarantees, I was going to spend the first few months doing stuff..like a cruise, or traveling somewhere, until I couldn,t. BOb was actually ok with his diagnosis...as he had known his entire life he was going to get cancer. (That a entirely separate story for another time)

So was it the Humana that caused this? That drug is advertised all day long on TV..for a litterny of things...why are they still giving it to people? BAD DRUG, BAD! ( if I loose my sense of humor I will go crazy).

I tried to ask God why these bad things happen to good people...I wondered why Charles Manson never got cancer? I think that fact adds to my belief that it is caused by something around us..and he was incarcerated all those years, with no contact to the outside pollutants we face every day.        I also believe in Karma..but I am REALLY rambling here..sorry. So I am going to stop before I babble my way into a coma...my heart is with you, Steve. 

Comment by deborah peck on September 9, 2018 at 11:52am

Steve, I saw your post yesterday but had to give myself time to think. I too am amazed that drug companys get away with handing out meds with such bad risk, its like you trade one evil for another. I know you will get thru this as you have an angel in heaven to help you plus one on earth.God throws many obstacles in our life and you have been thru. . many so you know how to think positive and give the "C" word a run for its money and I know you will win. please let me know if I can help in any way at all I will do whatever I can, Deb

Comment by Steve G. on September 9, 2018 at 7:34am

Thank you Mary Jane...

Yesterday was just that yesterday.  I hesitated to post because I was feeling a little sorry for myself.  Yesterday was when all of the feelings you just described welled up inside and I was depressed beyond description.  Today is a new day.  I am no longer in yesterday, I can choose to pick up the routine of my daily life and add new routines that will be prescribed to me by my medical angels...that is how I am seeing them, especially my primary care physician Courtney R.  She was there on the phone with me the night before Mark passed.  She was there holding me and crying along with me in her office as we both missed him so much, you see she had no problem with us being a gay couple, she treated us both.  She is the one that ran a routine blood test after I told her what the rheumatologist doctor had prescribed for me.  So, she is the one that caught this ugly thing invading me.  Please do not work yourself up over this, I have many Angels around me.  I maybe 71, but it ain't over yet.  I can and will do what is necessary to beat it.  Of this I am quite positive about.  And yes, I will have good days and bad days.  I am going to stay busy and focus on all the good days ahead.  I guess that in one sense I am adding grief onto grief, which is why I still come to my family here on Legacy.  You are such a dear and giving person, thank you my sister and be well, I am going to be just fine.

All my love and hugs

Steve 

Comment by Mary. Jane on September 8, 2018 at 8:47pm

Steve, I just saw this, and there is so much I want to say, but all I am feeling now is ANGER..really violent anger...this is SO unfair and sh*tty and what I want to do right now besides “go off” on my fantasy of all the corporations etc, who are knowingly giving this to us, in our food, in the air, in the medications we trustingly take, being held accountable...but that isn,t going to happen for a very long time...so I will create another scenario..I magically transport myself to your home, walk through your front door, sit down with you and Chuck and Bella, and just hold you, and cry, and tell you we will get through this. 

I just don,t know what to say. I hope you and your Drs are correct...this is just “cancer light” and you will get through it. The only other thing repeating in my mind is “WHY?”  Wasn’t once enough? On a positive note, a very good friend of mine is now 2 years, cancer free...and she, too got it from hormone medication her Drs were giving to her...but they caught it early..and after 1 year of chemo, and the loss of both breasts...I had better stop typing...I an just getting myself worked up, at your expense...these are the things that I don,t understand...and wonder Does prayer really work?  Something is VERY VERY wrong with this world. 

Again, my heart is with you...but that is all I can say now, it just isn’t right, or fair, and honestly and surprisingly I don,t think I have ever been this angry at the world and what keeps happening to wonderful people, and I just don,t understand why. 

Comment by Steve G. on September 8, 2018 at 2:05pm

Marsha,

What a wonderful story, I have thought of this story this past week a lot.  

To all my dear legacy family,

The cancer I fought and won has once again re-turned and as bad as this sounds, it really is not as bad as we were expecting.  The Humira caused this, however, because of my primary care physician and many other angels in my circle of medical professionals it is microscopic.  The petscan did not show anything growing, so my outlook for beating this again is very high.  Next week I start isolated radiation treatments for 6 weeks plus I will be given an Infusion Injection to stop the hormones that are feeding this cancer.  Prognosis is good and I am confident that this is just another one of life's little surprises (kind of like a speed bump) we encounter on our path through this life.  Oddly I am not afraid, just a little tired and sometimes a little depressed, all of which can be side affects to the medications I am taking.

I know that venting it here changes my mood and helps me to shake off the blues - as it were....

Love and hugs to one and all

Steve 

Comment by Marsha H on September 5, 2018 at 1:12am

Wisdom often comes out of the mouths of babes. (This little boy won the contest.)  This is only what we ask of people.

A 4 year old child who lived next door to an elderly gentleman that just lost his wife. Upon seeing the man cry, the little boy went into the old Gentleman's' yard, climbed onto his lap  and just sat there.

When his mother asked him what he had said to the neighbor, the little boy just said,

'Nothing, I just Helped him cry.'

Comment by Sara Murphy on September 4, 2018 at 9:48pm

Hi Mary.... I can only imagine how difficult it is to see the school buses every day.  It's funny because there are things my husband loved all around our home but I would hate to have to deal with it every day while driving too.  Thinking about you tonight.

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