Loss of a loved one due to Cystic Fibrosis
Latest Conversations: Jun 12, 2016
Started by Christine Linde. Last reply by Linda Roggli Jan 21, 2015. 1 Reply 0 Likes
I never thought this would be so hard. I was married to David for over half of his life. When we married I asked for 5 years because I knew how sick he was. At the 5 year mark, he had his first…Continue
Started by Michelle Kennell. Last reply by teresa magee Jan 14, 2015. 3 Replies 1 Like
My son Nick was diagnosed at 8 months old with cystic Fibrosis. Last year he had the best year of his life. He was healthy and happy. He got engaged to a beautiful girl, Ashli, and was off oxygen. I…Continue
Started by Alice Tsakonas Oct 1, 2014. 0 Replies 0 Likes
I lost my two daughters Christina and Jennifer October 1, 2008 and June 18, 2009. Today is 6 years for Christina. I miss them very much and feel shattered and broken. Most people including my husband…Continue
I lost my amazing brother Jonathan to Cystic Fibrosis on March 18th 2016. Jon was only 34 years old, a lung and kidney recipient. Jon was loved by so many people, because he had such a kind heart, a warm embrace I have not seen duplicated. I miss him so much, its hard not having him around. About year prior to his passing, I donated my kidney to him, he was so do so well for a awhile but he got sick with a lung infection which he was not able to recover from. I'd love to connect with others who know my pain and wish to comfort each other.
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My beautiful baby boy, Shannon passed away almost a year ago. He was 37 years old. Shannon was diagnosed with Cystic Fibrosis when he was just 6 weeks old. He loved life so much and he fought hard to live each and every day. He wanted to leave his mark on the world and to never be forgotten. Shannon wanted to fall in love, get married, and have a family. He was cheated out of so much in life. I miss him beyond belief and each day only gets worse.
Recently, I learned that a spiritual sister of mine has had cystic fibrosis since the age of two. This caused her severe respiratory and digestive problems. She even had to take some" 36 different pills". Looking forward to the day when no one will say I'm sick (Isaiah 33:24)
I understand how you feel. Our son passed November, 2008 almost 3 years ago from cystic fibrosis. You would think that it gets better but it doesn't. You want someone to know how you feel but aren't sure they can. I will talk to anyone and everyone who will listen to me tell about my boy. My heart aches for him. I miss him so much. It's just so hard living without him. My heart is so saddened by all of the losses from this horrible disease and what it does to the loved ones who have been left behind. Perhaps we can help each other with our grief.
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