Hi Jessica, thanks for asking how I'm doing with my MD. Let's just say I refuse to stop trying. I prayed that I would have the ability to care for my parents until their deaths and God heard me.I clung to Philipians 4:13 I can do all things through Christ who strengthens me. Some days like today all I really want to do is sit because everything hurts. FSH type of MD causes muscle weakness progressing from face on down as I get older.i still exercise in a pool nd can walk with a walker or 2 walking sticks to support my posture. It doesn't affect breathing or heart function so I plan on living at least until 90! I'm having too much fun with my grandchildren to leave before then.
I am a homecare RN and have experience with hospice too. It enabled me to care for my mom for 3years in bed from Lewy Body Dementia and Muscular Dystrophy. She had a living will and was DNR so she stayed home until the end. At the same time my dad's Alzheimer's was diagnosed. I also have MD. I miss them both but am glad my dad didn't have to go through what she did. My dad and I were very close. I'm sure I'll see him in heaven but it's hard right now. He was an artist so I'm surrounded by his paintings. It helps.
Sandra-thank you for reaching out to me. I've looked for local loss support groups but my town is limited with help and resources. So I thought I would try this and connect with people who have give through what I've been through. I am so sorry about your loss. Dementia is a horrible disease to have to watch a loved one go through. I was a in home CNA and took care if hospice patients and watching some of the people I cared for with dementia saddened me all the time. But your dad was lucky to have you in his life. You seem like a very caring person.
Welcome to Legacy Jessica. I'm sorry to read of you losing your dad recently. Knowing we are here to share feelings and comforting words can really help. I'm speaking from experience, having lost my mom in August of 2011 and my dad this Feb. I am 62 and he was 87 but it was sudden and a shock. I found him in bed early one morning. We are never really ready to lose a parent, especially the second one.you are the age of my daughter with the same name. She and her husband and 2 sons lived with my dad the last 3 years and helped me care for him. He had dementia but was still doing well. It's been so hard for them too. I hope as time passes your emptiness will lessen and good memories will prevail. Share with those who care and don't put a time limit on yourself for grieving. Write as often as you need to. We are here for you.