Hi I am Lisa I lost my granddaughter Alexis on 11/02/14 to a congenital heart defect. I have lost a granchild before but the pain seems so much more unbearable. My sweet baby endured 2 open heart sur…

Hi I am Lisa I lost my granddaughter Alexis on 11/02/14 to a congenital heart defect. I have lost a granchild before but the pain seems so much more unbearable. My sweet baby endured 2 open heart surgeries, 3 heart caths, a trach, and a GJ tube. We had hopes that she would be able to get a heart transplant but were denied by 4 hospitals. This precious angel went thru all this and still managed to smile unless she was feeling really bad. We lost her at 15 months of age. We also found out that she had a genetic syndrome called KBG.

Views: 72

Comment

You need to be a member of LegacyConnect to add comments!

Join LegacyConnect

Latest Conversations

DontWannaDisclose joined Lorie Petrey's group
Wednesday
Joan Mosher posted a status
"My brother passed away on September 26th 12 Days after is 52nd birthday and I'm tough time"
Tuesday
Profile IconJoan Mosher and DontWannaDisclose joined LegacyConnect
Tuesday
CAB joined Lisa W's group
Oct 16

Community Guidelines

Please be respectful of others. For more information, read our Community Guidelines.

Follow Legacy

© 2021   Created by Legacy.com.   Powered by

Badges  |  Report an Issue  |  Terms of Service