It's so hard to even breath right now. Feels like I am drownding in my own breath. Lacey has been gone 280 days today. 18 years we had the miracle of her.
Lacey had been ill for years, but ... she was able to live a life full of joy & adventure of a 'normal' kiddo. Attending public school until 2006, she just got too ill to make it everyday. After kidney transplant & various other illnesses Lacey began attending school at The Childrens Hospital in Aurora Colorado. So many many gift were allowed to her during that period. In & out of hospital on regular basis, over 60 admissions in 3 years, May 2 2009 was her last admission. Lacey had a condition that focused on her lungs , she was not to drink any fluid unless she thickened in to a honey consistency with thickner that was always available no matter what. I had tucked her in bed with a kiss & a prayer the night of May 1, 2009.
Her meds were due at 8 am --- when I went into her room an hour later our Lacey was barely alive. 911 HELP !!!! AHHHHHHHHH she not breathing !!! her eyes rolling back in her head AHHHHHHHHHHH !!!!
Ambulance took her to a hospital near our home only to be flown ( flight 4 life ) to TCH where we were told her brain was basically dead. Docs told us her lungs were full of fluid & no oxygen had arrived to her brain. Her brain was so swollen ... out of 100 children that was seen in this condition, 100 died. On May 15, Lacey's heart stopped beating. I think mine did too. I have chills. Just need to connect ... to something, someone ...